My favorite resources for RA and other invisible illnesses
This is one of my very favorite support sites for all things arthritis and pain. Seth Ginsberg has done a great job in bringing the RA and chronic pain community together, creating synergy, and affecting positive change. I particularly like to read his advocacy section, so be sure to check that out. There are also medication coupon resources under “support,” consider looking at that also. Love, love, love this site!
the National Arthritis Foundation
This is another great site and source of tremendous support for arthritis patients and families. All forms of arthritis are discussed here, not just rheumatoid and auto-immune arthritis. While invisible illnesses like lupus, Sjogren’s and dysautonomia aren’t the main focus of the site, there are lots of resources either on these disorders specifically, or which could easily be applied to the challenges these other AI’s present. I’ve spoken with some of their association team leaders, and they are very helpful and quite passionate about their purpose. As an RA patient, I find that extremely encouraging, and I draw comfort from knowing that they are advocating on my behalf at the local, state and national levels.
This is a decent site with lots of good information. Many different chronic illnesses are addressed, so if you have a chronic diagnosis that’s kind of out of the box, this might be a great resource. There do seem to be a good bit more advertisements on this site, which I find cumbersome, but if you can get past that, there are some good articles on getting diagnosed, chronic pain and mental health, etc.