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If you’re like most chronic illness folks, you’ve been waiting quite a while to get in to see a Rheumatologist for the first time. The shortage of Rheumatologists is palpable throughout the journey, and finding a good one is worth the wait. The wait is, however, quite difficult and feelings of overwhelm and being lost, … Read more
New to the chronic illness journey and waiting forEVER for that first visit? Here are some tips for waiting well in the meantime.
Often overlooked, the admin side of sick leaves us tired, frustrated, and even a bit defeated. Here are some things to avoid on the admin side of chronic illness.
A chronic journey sort of forces our hand to learn new skills and new ways of doing things. Here’s a slightly different take on 5 skills every Chrony must develop.
As difficult as daily life with chronic illness and autoimmunes can be, perhaps the most difficult part of the journey is figuring out what the diagnosis even is. The diagnostic process can take many months, or worse, years, to finally arrive at the name of the illness that’s now made its way to your diagnosis … Read more
Loneliness. This one slipped up on me. I didn’t see it coming. The sting of being on rest, taking it easy and officially out of work was terrible. It wasn’t the first time the docs had said to take some time away. One must take in to account that until that last few years, … Read more
You guys have been there. Hearing the same comments over and over. Some you like, some are funny and some probably get under your skin a little. Here are my hidden thoughts about some of the comments I hear all the time. I bet some of you Rheumies and CDP’s hear these, too! After 8 … Read more
Once chronic descends upon your life, the word “pace” has a very different meaning. We used to laugh and just keep going, but now we pay the price with that kind of approach. Here I discuss some tips to help find a pace that works. Just the very sound of the word “pace” – or … Read more
